SocialButterfly.

According to a January 2008 study titled How America Searches, Health and Wellness:

• In the past 12 months, 59% of adults reference the internet to find or access health and wellness information.
• 67% of adult searchers use general search engines as an online tool or resource for health information and only 7% referred to online drug advertisements.
• 36% of adult searchers use online health information to see what other consumers say about a medication or treatment

Because of statistics like those above, the concept of ‘Health 2.0′ has increased its usage and importance. Simply, Health 2.0 = the merging of social media into healthcare. However, others see the movement of Health 2.0 as something much wider and farther reaching. Even Google image searching shows a variety of more complex definitions. I’d be interested to see how you all define it for yourselves or for your practice.

Examples of Health 2.0

Websites

• Carol.com , started in 2006, is the marketplace for care, allowing hospitals and providers to ‘bid’ for consumers’ care
• Vitals.com, allows patients to review their current doctor’s or a potential doctor’s reviews and ratings
• DoubleCheckMD, allows consumers to check for potential drug interactions quickly and easily
• American Well , creates a healthcare marketplace where consumers and physicians come together online to acquire and provide convenient and immediate healthcare services

Wikis

• Wikipedia
• FluWiki
• WiserWiki, a medical and healthcare information wiki edited exclusively by physicians
• Clinfo Wiki, a wiki devoted to clinical informatics
• Ask Dr. Wiki, allows those with a medical background to publish review articles, clinical notes, pearls and/or medical images to the wiki. The main focus has been on Cardiology and Electrophysiology, but they have expanded to other areas.

Blogs

• DiabetesMine, a blog all about diabetes
• HealthMatters (Healthline), a collection of weblogs by professionals, covering different aspects of health, wellness, treatments, and recent advances
• WebMD, provides health and health-related information

Social Networks

• OrganizedWisdom, the first human-powered search service for health information
• PatientsLikeMe, find patients who are receiving the same or similar treatments
• DailyStrength, helps one find support groups
• Sermo, a community for physicians to share information, questions and observations amongst themselves, encouraging collaboration
• ReliefinSite, helps with pain managemnt
• NursesRecommendDoctors
• TheHealthCareScoop

Video-Sharing

• ICYou, the source of healthcare videos and videos related to health information
• Cleveland Clinic on Google Video
• TauMed, a virtual health community where one can search and share information on a variety of health topics

Online Forums

• Revolution Health Groups
• Google Health Groups, find support and community groups
• iVillage

Podcasts

• Johns Hopkins Medical Podcasts
• NIH Podcasts
• NY Times Health Pocasts
• CDC Travelers Health
• dLife podcasts for diabetes, information and inspiration for those with diabetes

Caution

Health 2.0 researchers warn that patients should be cautious about posting personal health-related information through unsecured social media as health insurance providers could gain access to this information, as well as potential employers.

Future

Social Media combined with health information, patients and user-generated content can be used for:

• User-generated health ratings for hospitals and doctors
• Bridge the gap between doctor and patient
• Bring communities together in new, innovative ways
• Establishing patients as opinion leaders
• Managing health and managing community health in new ways

For specific case studies and more information, view this report titled: The Wisdom of Patients: Health Care Meets Online Social Media prepared for the California Healthcare Foundation by Jane Sarasohn-Kahn.

Questions to Ponder

• Is Health 2.0 helpful or harmful?
• Is the content trustrworthy? Does it matter? Will consumers take the information at face value?
• Why are patients labeled as consumers? What does this mean/say about how health 2.0 is being approached?
• What are the ethical concerns?
• What are the privacy concerns?

Can’t wait to read your insights in the comments. =)

Continuing in my blogger outreach series, this post will focus on law that addresses privacy in regard to bloggers and blog content.

Privacy: Currently, privacy is not included in the bill of rights, but as technology increases, it’s developing into quite the controversy. To protect yourself as a blogger and the subjects included in your posts, it is important to understand the law surrounding online privacy issues and the increasing issues involving privacy

There are 2 ways to approach privacy:

1. Your privacy as a Blogger AND
2. the privacy of the people involved in your blog’s content

To protect your privacy as a blogger, there are some different approaches with strengths and benefits. These include:

Blog Completely Anonymously

• Create a Psuedo-name
• Do not give away identifiers in the blog’s content
• For COMPLETE anonymous blogging, try Invisiblog, Tor and Anonymizer. These are applications that help you create an anonymous blog where the creators and hosts of the blog won’t even have access to your information, can hide your IP address, and allows for anonymous editing of your blog.
• Limit Your Audience
• To avoid being found in search engines or in Google, install a ‘Robots Text File Generator’ into your blog’s architecture.
• Set-up an alternative email address.
• Update from a public computer.

Pros/Cons: Privacy protected. But, if you desire more traffic, hits or views, this could limit you. And, you don’t get credit for your hard work and time into up-keeping your blog.

Blog Anonymously, but control who knows who you are

• Create an alias…but with talking with friends, family, co-workers, or online contacts, feel free to share that it is your blog. But, you don’t have to put your name on the blog. This allows you to control who can identify the blog as yours, and allows you to control to some degree who knows you have a blog.
• This is the option this blog SocialButterfly has chosen for a variety of reasons. Eventually, I will more than likely reveal my true identify, but in the meantime, I am collecting feedback on what employers, friends, colleagues think of someone wearing a ‘blogger’ hat.

Pros/Cons: Allows you to get feedback on what others think of your blog and protects your privacy to some degree meaning that random unique visitors can’t identify you without first contacting you and YOU deciding to disclose your identity to them based on your interactions with them.

Blog Openly, but control the type of information visible

• Put a picture of yourself on the home page, along with a concise bio about your background and why you are blogging.
• Consider the blog as a way to extend your ‘personal brand.’ So, your communications about yourself need to help build and add credibility to your blog.
• Allows creator to develop long-term personal connections and relationships with readers.

Pros/Cons: This allows you take full advantage of social media at its best. As a small business owner, it allows to you communicate with possible consumers and to extend your business’ message and purpose and connects consumers to you on a more personal level. Cons include that you are personally identifiable on the web. Anyone can find your blog, know its yours, and may judge you on your blog before meeting you or making a personal connection with you. This could also affect potential employers or current employers.

Blog Completely Openly

• This is an open, anything goes approach to blogging.

Pros/Cons: Your belief in free speech is rightly communicated and your views are open, honest and shared. However, you may have to provide evidence and reasons why you say what you say. Basically, be prepared to back yourself up. Cons could include potential employers shying away from you, or wanting to fire you because of your blog.

Some more points to remember as a blogger are found here including laws on political speech, unionizing, whistleblowing, blogging when you work for the government, and legal off-duty activities. Blogging about work activities when you work for the government is actually protected under the First Amendment according to the Electronic Frontier Foundation.

Lessons from Privacy for people involved in the blog’s content:

• If you plan on posting images, videos, or audio of subjects you interview or interact with, gain their consent before posting this material - especially if the material contains minors.
• Get parental consent if the content relates to minors, and blur the minors face or voice if possible since laws pertaining to minors are much more strict.
• If you shoot film or take photographs, to be safe, make sure it is done on public property unless you have the participants consent. This will avoid trespassing and invasion of privacy issues.

As blogging increases, it is important to note that many people have different feelings about anonymous-related blogging and the laws continue to change as the technology matures. And as a disclaimer, I reiterate, I am not a lawyer.

For more information on electronic privacy issues, see EPIC, the electronic privacy information center.

**If you are an expert in this area, please contact me as I’d be curious on your thoughts and feedback on this post. Thanks! **

On my Twitter feed, I recently asked the question:

What are people’s experience with their clients and organizations about incorporating blogs and/or blogger outreach to their interactive marketing plans?

I ask this because as social media knowledge expands, more organizations are looking at the concept of blogging, including government agencies. Thus, this next series of posts will revolve around questions organizations must ask themselves when wrestling with the ‘blogging dilemma.’ Or, to change the outlook and attitude, the blogging opportunity.

**********************************

Question 1: To blog, or not to blog, that is the question.

The first response I usually receive when discussing blogging is a question relating to regulation. Thus, to start-off this series, this post will focus on regulation. Not all organizations desire to blog. In fact, many fear blogging because of a popular notion that it is an unregulated mode of communications…a public relations disaster waiting to unfold. These fears inspire numerous questions.

1. What if someone leaves a bad comment?
2. What if the blogosphere doesn’t approve or doesn’t view us as transparent?
3. How will we manage this logistical mess?
4. How do we even evaluate if we make any progress?
5. What can a blog even achieve?
6. What is a blog?
7. What will a blog cost us?
8. How do we control a blog?

and the list continues. These questions cover a lot of topics. In my experience, this concept of regulation most often appears with government clients. Here is a common statement:

“We can’t do blogging. It’s unregulated and you have no idea what people will say or how they’ll say it. We are a government agency, and we can’t take that sort of risk.”

This fear is understandable. For those not infiltrated in the blog arena, it appears messy - and at times, honestly, it is. However, the blogosphere doesn’t have to be completely viewed as ‘unregulated.’

Here are two examples on how organizations have approached blogging:

1. Regulate Blog Access. One organization I’m working with loves the idea of blogs, so much…(possibly a bit too much in my opinion…but hey, it’s also going to be a trial and error basis)…that their site will have 5-8 blogs. Logistically, this will be interesting. But in theory, the idea is to regulate who has blog access. The site will be set-up as an online community, so only members will see all the topical blogs. Whereas, the public will only see the one main blog. This way we can regulate what non-members have access to.

• Allow comments or don’t allow comments.
• Organizational, internal blogs only. The CIA has over 1,000 internal blogs!
• Blog Policies
• Which members get access to which blogs.
• With government agencies, due to the Children’s Online Privacy Protection Act (COPPA), children under 13 cannot leave comments.

2. Trial and Error. One consulting client I worked with loved the idea of a blog, but wasn’t sold on having the blog content being created and written by the organization. They wanted to use a blog as an outreach to their non-profit’s community as another tool of engagement. So, they started the blog, regulate it, but let their community members write the content by having the blog’s perspective be: Share Your Story. So, those wrestling with the non-profit’s illness shared their stories, could build online community and support one another.

• Event blogging
• Live Blogging
• Topical Blogging

Now, if you are working with a federal or state agency, the notion of blogging ruffles some feathers. Here is a critical case to make: blogging has been done. and can be done. Here eare some helpful sites to note:

1. Public Officials’ Blogs. Just do a quick environmental scan of the presidential candidates’ websites! This site even offers a full listing of current blogs held by public officials across the United States.

2. Increasing Government Agencies’ Blogs. Now the list may be small, especially when considering just how many agencies exist, but it’s a starting point.

3. Government Blog Resource. A great outline of what blogs are, issues to consider, blog statistics, viewpoints, etc…a great resource!

4. Research Study. “The Blogging Revolution: Government in the Age of Web 2.0,” a report by the IBM Center for the Business of Government which lists congressional, state, and local blogs.

(pic from www.masternewmedia.org)

After my last post, I received an email asking how other non-profits or social causes could also use blogging technology for its purposes. Below, I list someways blogging can be used by non-profits as well as some strengths and limitations of the technology.

First Things First

I come with the view that like in the commercial sector, finding an umbrella term to put all non-profit marketing and advertising under is difficult. Research studies have been explored, textbooks written, debates held and still universal definitions are lacking. Some used to think a few years back the IMC, Integrated Marketing Communications would be the end-all classification system for advertising. Yet, this debate still continues. Do we put public relations under this? Why the term marketing? Where does viral belong? etc.

Therefore, just like the commercial advertising arena suffers from an identity crisis, so does the community of non-profit/health communications/social causes/etc. Though, I might classify many of these as social marketing. But then, where do we put corporate social responsibility or cause marketing? (These both have profit aims…) So, yikes! Is there overlap? Is overlap the right word? What are we to do? The questions and debates continue. In discussing these terms and looking at definitions, I am going to offer up that is depends largely on your end objective. I agree there’s more to this debate, but for practical considerations (and when looking to use blogging technology) I say, first determine your end objective to decide if, and what type, of blogging is right for you.

Examples of Blogging Being Used by Non-Profits:

Citizen’s League in Minnesota. They have two blogs. One that is updated with public policy news, trends and updates. The other who is from the point of view of a person which has similar content, but the first person point of view adds relevance and personalizes the stories.

Children Matter. A Christian non-profit ministry who uses a blog for its message.

Strengths of Blogging

1. A blog can provide an outlet for stories to be told regarding the issue or project. This can also be created as a way to get more involved and to increase participation. It can also make the message for personal and relevant. Interplast has their volunteers upload information and share stories about their experiences regarding their work site.

2. Helps build an online community. This includes expanding your traditional media lists to include other bloggers, online social networks, websites and more.

3. Blogging has no geographic limitations unlike a lot of traditional media (tv, radio, magazine, newspapers).

4. Requires small tangible finances. But, may require more employee/volunteer hours and time to manage.

5. Can boost media coverage by expanding your traditional media list to include fellow bloggers, social networks, online communities, websites and more.

6. Put your already-drafted press releases to good work by setting up an RSS feed on your blog to provide up-to-date news about your organization. this allows others to know what the organization is up to, gives those interested more information to talk about and can increase your media coverage.

7. Provide information and resources via a blog. A blog is one way to provide the same information you could on a website or brochure, but in an interactive, fun, and personal manner. For example, instead of telling what the participants do throughout the year. Have the voice of your blog be told through the ‘Volunteer Sarah’ and give it a diary feel.

8. From your blog, you can also provide information on how to get involved, donate, volunteer, and participate. This could include a sign-up page for the weekly email blasts.

9. Blogs also are a way to track, organize and build a resource for an organization/cause. If it comes time to write a report, you can search your blog for all relevant information regarding ‘XYZ’ and poof- you have all the information you need already written.

10. Use a blog as your organization’s website.

11. For good feedback, use your blog as a sounding board or discussion forum. Also, blog stats and analytics could help you find more target audiences interested in your cause.

12. Add your blog to the Nonprofit Blog Exchange using this form to automatically get plugged into an online community and to increase traffic.

Limits of Blogging

1. If you use a free service (blogger, wordpress, etc.), sometimes you are limited with the type of content you can post. Examples including: limitations for customizing options including how you organize content or the design unless you have someone with the expertise to do so, or upgrade your blog service.

2. The domain name can be tricky. Unless you want to purchase a domain, your domain name will (usually) include the blog service you are using. However, domains can be purchased for something like $10/year. This blog also provide many helpful tips and resources for creating your own domain.

3. Must provide quality information at a consistent rate.

More Sources

Should Your Non-Profit Launch a Blog?

10 Ways Nonprofits Can Use blogging

Have Fun * Do Good

Blogs for Non-Profit Orgs

5 Tips to Starting a New Blog