SocialButterfly.

Last week, I published a post on Health 2.0, based on a couple research studies that were recently released.

Also last week, another report was published by the Scientific American Magazine that looked at the concept of Science 2.0, titled “Is Open-Access Science the future?“

About

Before this article was published, the author put the draft version of the article in a wiki, and encouraged readers’ comments and edits…to help formulate the articles final version.

In this article, the author looks at the increasing use of social media within marketing, journalism, and politics - and how it can spread to the field of science, as more researchers increase their use of web 2.0 tools within their research. Some critics think that this new process to scientific discovery curbs the traditional institutional lines and poses danger. Advocates see Science 2.0 as a way to increase openness and collaboration across studies - furthering progress

Science 2.0

Science 2.0 refers to the growing movement of integrating social media into the scientific process and its promotion. Science 2.0 is a component of the broader Open Science movement according to the author of the article, M. Mitchell Waldrop. This Open Science Movement includes other topics such as open-access scientific publishing and open-data practices.

Case Study

The article points to a success project named OpenWetWare at MIT, which:

“OpenWetWare is an effort to promote the sharing of information, know-how, and wisdom among researchers and groups who are working in biology & biological engineering. OWW provides a place for labs, individuals, and groups to organize their own information and collaborate with others easily and efficiently.”

OpenWetWare now hosts more than 15 labs, 6100 web pages and is edited by 3000 registered users. To learn more, gain access, or get involved, you can contact the project at admin@openwetware.org or join here.

Concerns

Due to the content of this budding use of technology, in that it is labeled ’science’ brings many concerns to critics minds. These include:

• Privacy Concerns
• Authorship and Copyright
• Looking ‘unprofessional’
• Undermining the field of ’science’
• Trust-worthiness of information and hackers

Future

Despite concerns, advocates see Science 2.0 as still in its launching point. Future ideas for implementing Science 2.0 include:

• Collaborate for scientific articles and ideas
• online lab journals
• Developing internet-friendly lab equipment
• Virtual scientific conferences
• Virtual Labs
• Updated Lab ‘feeds’
• Data-Sharing
• Truth-Based Social Marketing
• For more information regarding these ideas and more visit here.

More

• Duncan Hull wrote up an insightful blog post about science 2.0 by interviewing scientist and researcher Dave DeRoure. DeRoure mapped out what he thinks is a widening gap between scientists and the web infrastruture. You can read the post here.
• For those who like reading how trends relate, the Columbia Journalism Review wrote up a great article about web 2.0 and its evolution to Journalism 2.0 and Science 2.0, and how the two concepts relate. The author demonstrates how concerns towards the two fields are similar and the implications this has for science journalism 2.0.

What are your thoughts on Science 2.0?? A ‘yay’ or a ‘nay’ …share with us your thoughts

According to a January 2008 study titled How America Searches, Health and Wellness:

• In the past 12 months, 59% of adults reference the internet to find or access health and wellness information.
• 67% of adult searchers use general search engines as an online tool or resource for health information and only 7% referred to online drug advertisements.
• 36% of adult searchers use online health information to see what other consumers say about a medication or treatment

Because of statistics like those above, the concept of ‘Health 2.0′ has increased its usage and importance. Simply, Health 2.0 = the merging of social media into healthcare. However, others see the movement of Health 2.0 as something much wider and farther reaching. Even Google image searching shows a variety of more complex definitions. I’d be interested to see how you all define it for yourselves or for your practice.

Examples of Health 2.0

Websites

• Carol.com , started in 2006, is the marketplace for care, allowing hospitals and providers to ‘bid’ for consumers’ care
• Vitals.com, allows patients to review their current doctor’s or a potential doctor’s reviews and ratings
• DoubleCheckMD, allows consumers to check for potential drug interactions quickly and easily
• American Well , creates a healthcare marketplace where consumers and physicians come together online to acquire and provide convenient and immediate healthcare services

Wikis

• Wikipedia
• FluWiki
• WiserWiki, a medical and healthcare information wiki edited exclusively by physicians
• Clinfo Wiki, a wiki devoted to clinical informatics
• Ask Dr. Wiki, allows those with a medical background to publish review articles, clinical notes, pearls and/or medical images to the wiki. The main focus has been on Cardiology and Electrophysiology, but they have expanded to other areas.

Blogs

• DiabetesMine, a blog all about diabetes
• HealthMatters (Healthline), a collection of weblogs by professionals, covering different aspects of health, wellness, treatments, and recent advances
• WebMD, provides health and health-related information

Social Networks

• OrganizedWisdom, the first human-powered search service for health information
• PatientsLikeMe, find patients who are receiving the same or similar treatments
• DailyStrength, helps one find support groups
• Sermo, a community for physicians to share information, questions and observations amongst themselves, encouraging collaboration
• ReliefinSite, helps with pain managemnt
• NursesRecommendDoctors
• TheHealthCareScoop

Video-Sharing

• ICYou, the source of healthcare videos and videos related to health information
• Cleveland Clinic on Google Video
• TauMed, a virtual health community where one can search and share information on a variety of health topics

Online Forums

• Revolution Health Groups
• Google Health Groups, find support and community groups
• iVillage

Podcasts

• Johns Hopkins Medical Podcasts
• NIH Podcasts
• NY Times Health Pocasts
• CDC Travelers Health
• dLife podcasts for diabetes, information and inspiration for those with diabetes

Caution

Health 2.0 researchers warn that patients should be cautious about posting personal health-related information through unsecured social media as health insurance providers could gain access to this information, as well as potential employers.

Future

Social Media combined with health information, patients and user-generated content can be used for:

• User-generated health ratings for hospitals and doctors
• Bridge the gap between doctor and patient
• Bring communities together in new, innovative ways
• Establishing patients as opinion leaders
• Managing health and managing community health in new ways

For specific case studies and more information, view this report titled: The Wisdom of Patients: Health Care Meets Online Social Media prepared for the California Healthcare Foundation by Jane Sarasohn-Kahn.

Questions to Ponder

• Is Health 2.0 helpful or harmful?
• Is the content trustrworthy? Does it matter? Will consumers take the information at face value?
• Why are patients labeled as consumers? What does this mean/say about how health 2.0 is being approached?
• What are the ethical concerns?
• What are the privacy concerns?

Can’t wait to read your insights in the comments. =)

Continuing in my blogger outreach series, this post will focus on law that addresses privacy in regard to bloggers and blog content.

Privacy: Currently, privacy is not included in the bill of rights, but as technology increases, it’s developing into quite the controversy. To protect yourself as a blogger and the subjects included in your posts, it is important to understand the law surrounding online privacy issues and the increasing issues involving privacy

There are 2 ways to approach privacy:

1. Your privacy as a Blogger AND
2. the privacy of the people involved in your blog’s content

To protect your privacy as a blogger, there are some different approaches with strengths and benefits. These include:

Blog Completely Anonymously

• Create a Psuedo-name
• Do not give away identifiers in the blog’s content
• For COMPLETE anonymous blogging, try Invisiblog, Tor and Anonymizer. These are applications that help you create an anonymous blog where the creators and hosts of the blog won’t even have access to your information, can hide your IP address, and allows for anonymous editing of your blog.
• Limit Your Audience
• To avoid being found in search engines or in Google, install a ‘Robots Text File Generator’ into your blog’s architecture.
• Set-up an alternative email address.
• Update from a public computer.

Pros/Cons: Privacy protected. But, if you desire more traffic, hits or views, this could limit you. And, you don’t get credit for your hard work and time into up-keeping your blog.

Blog Anonymously, but control who knows who you are

• Create an alias…but with talking with friends, family, co-workers, or online contacts, feel free to share that it is your blog. But, you don’t have to put your name on the blog. This allows you to control who can identify the blog as yours, and allows you to control to some degree who knows you have a blog.
• This is the option this blog SocialButterfly has chosen for a variety of reasons. Eventually, I will more than likely reveal my true identify, but in the meantime, I am collecting feedback on what employers, friends, colleagues think of someone wearing a ‘blogger’ hat.

Pros/Cons: Allows you to get feedback on what others think of your blog and protects your privacy to some degree meaning that random unique visitors can’t identify you without first contacting you and YOU deciding to disclose your identity to them based on your interactions with them.

Blog Openly, but control the type of information visible

• Put a picture of yourself on the home page, along with a concise bio about your background and why you are blogging.
• Consider the blog as a way to extend your ‘personal brand.’ So, your communications about yourself need to help build and add credibility to your blog.
• Allows creator to develop long-term personal connections and relationships with readers.

Pros/Cons: This allows you take full advantage of social media at its best. As a small business owner, it allows to you communicate with possible consumers and to extend your business’ message and purpose and connects consumers to you on a more personal level. Cons include that you are personally identifiable on the web. Anyone can find your blog, know its yours, and may judge you on your blog before meeting you or making a personal connection with you. This could also affect potential employers or current employers.

Blog Completely Openly

• This is an open, anything goes approach to blogging.

Pros/Cons: Your belief in free speech is rightly communicated and your views are open, honest and shared. However, you may have to provide evidence and reasons why you say what you say. Basically, be prepared to back yourself up. Cons could include potential employers shying away from you, or wanting to fire you because of your blog.

Some more points to remember as a blogger are found here including laws on political speech, unionizing, whistleblowing, blogging when you work for the government, and legal off-duty activities. Blogging about work activities when you work for the government is actually protected under the First Amendment according to the Electronic Frontier Foundation.

Lessons from Privacy for people involved in the blog’s content:

• If you plan on posting images, videos, or audio of subjects you interview or interact with, gain their consent before posting this material - especially if the material contains minors.
• Get parental consent if the content relates to minors, and blur the minors face or voice if possible since laws pertaining to minors are much more strict.
• If you shoot film or take photographs, to be safe, make sure it is done on public property unless you have the participants consent. This will avoid trespassing and invasion of privacy issues.

As blogging increases, it is important to note that many people have different feelings about anonymous-related blogging and the laws continue to change as the technology matures. And as a disclaimer, I reiterate, I am not a lawyer.

For more information on electronic privacy issues, see EPIC, the electronic privacy information center.

**If you are an expert in this area, please contact me as I’d be curious on your thoughts and feedback on this post. Thanks! **

On my Twitter feed, I recently asked the question:

What are people’s experience with their clients and organizations about incorporating blogs and/or blogger outreach to their interactive marketing plans?

I ask this because as social media knowledge expands, more organizations are looking at the concept of blogging, including government agencies. Thus, this next series of posts will revolve around questions organizations must ask themselves when wrestling with the ‘blogging dilemma.’ Or, to change the outlook and attitude, the blogging opportunity.

**********************************

Question 1: To blog, or not to blog, that is the question.

The first response I usually receive when discussing blogging is a question relating to regulation. Thus, to start-off this series, this post will focus on regulation. Not all organizations desire to blog. In fact, many fear blogging because of a popular notion that it is an unregulated mode of communications…a public relations disaster waiting to unfold. These fears inspire numerous questions.

1. What if someone leaves a bad comment?
2. What if the blogosphere doesn’t approve or doesn’t view us as transparent?
3. How will we manage this logistical mess?
4. How do we even evaluate if we make any progress?
5. What can a blog even achieve?
6. What is a blog?
7. What will a blog cost us?
8. How do we control a blog?

and the list continues. These questions cover a lot of topics. In my experience, this concept of regulation most often appears with government clients. Here is a common statement:

“We can’t do blogging. It’s unregulated and you have no idea what people will say or how they’ll say it. We are a government agency, and we can’t take that sort of risk.”

This fear is understandable. For those not infiltrated in the blog arena, it appears messy - and at times, honestly, it is. However, the blogosphere doesn’t have to be completely viewed as ‘unregulated.’

Here are two examples on how organizations have approached blogging:

1. Regulate Blog Access. One organization I’m working with loves the idea of blogs, so much…(possibly a bit too much in my opinion…but hey, it’s also going to be a trial and error basis)…that their site will have 5-8 blogs. Logistically, this will be interesting. But in theory, the idea is to regulate who has blog access. The site will be set-up as an online community, so only members will see all the topical blogs. Whereas, the public will only see the one main blog. This way we can regulate what non-members have access to.

• Allow comments or don’t allow comments.
• Organizational, internal blogs only. The CIA has over 1,000 internal blogs!
• Blog Policies
• Which members get access to which blogs.
• With government agencies, due to the Children’s Online Privacy Protection Act (COPPA), children under 13 cannot leave comments.

2. Trial and Error. One consulting client I worked with loved the idea of a blog, but wasn’t sold on having the blog content being created and written by the organization. They wanted to use a blog as an outreach to their non-profit’s community as another tool of engagement. So, they started the blog, regulate it, but let their community members write the content by having the blog’s perspective be: Share Your Story. So, those wrestling with the non-profit’s illness shared their stories, could build online community and support one another.

• Event blogging
• Live Blogging
• Topical Blogging

Now, if you are working with a federal or state agency, the notion of blogging ruffles some feathers. Here is a critical case to make: blogging has been done. and can be done. Here eare some helpful sites to note:

1. Public Officials’ Blogs. Just do a quick environmental scan of the presidential candidates’ websites! This site even offers a full listing of current blogs held by public officials across the United States.

2. Increasing Government Agencies’ Blogs. Now the list may be small, especially when considering just how many agencies exist, but it’s a starting point.

3. Government Blog Resource. A great outline of what blogs are, issues to consider, blog statistics, viewpoints, etc…a great resource!

4. Research Study. “The Blogging Revolution: Government in the Age of Web 2.0,” a report by the IBM Center for the Business of Government which lists congressional, state, and local blogs.

(pic from www.masternewmedia.org)

“If I traded it all
If I gave it all away for one thing
Just for one thing
If I sorted it out
If I knew all about this one thing
Wouldn’t that be something?”

***

This may not be the one thing the group Finger Eleven was singing about, but Rosetta Thurman of the blog Perspectives from the Pipeline asks about a certain one thing….

***

“If (we) knew all about this one thing……wouldn’t that be something?!?”

I recently overheard a conversation that got me thinking. Here’s a clip from the conversation:

Person 1: With the rise of a third sector, defined as the non-profit sector, how will this affect both the private and public sectors? And, what are the relationships between the three and what will that mean for the future?

Person 2: Well, what is non-profit? Non-profit means merely a tax break. You have two kinds of non profits. Those that are genuinely good and advocate for their cause efficiently and effectively, but then you have those that don’t. So, when you say non-profit, you’re merely talking about a tax break.

Needless to say, this conversation got me wondering, and I’m still pondering. What is a non-profit? And, say the word ‘non-profit’ is a brand….how do current consumers perceive this brand?

I feel these questions are important because whether you are a political organization, grassroots, religions, a charity, professional organization, foundation, community oriented, advocacy organization, special interest group, etc… how the broad term non-profit is ‘branded’ and perceived could have large implications for your success.

Graduate student from Case Western Reserve University, Kate Luckert, provides a great outline on the definition of non-profits and various examples, including why they may/are important.

About. com’s definition tends to support Person 2’s definition of a nonprofit:

A nonprofit organization is one that has committed legally not to distribute any net earnings (profits) to individuals with control over it such as members, officers, directors, or trustees. It may pay them for services rendered and goods provided.

The European research Network states that there is no universally accepted definition to the term: non-profit sector. There is also no universally accepted social marketing definition. My view though is…. if the term non-profit lacks in credibility and reputation, the term social marketing should be used more often to describe certain effots.

Many organizations practice social marketing, but they don’t know it or realize it. Some people say that the term social marketing is too limiting, however, I see it more as an umbrella term backed with credible research.

Thoughts?

• nonprofit.
• social marketing.
• private sector.
• public sector.

How do they relate?

…does the concept User Interface ring a bell? What a User-Interface test?

As I hinted to in my last post, I think the evaluation step is maybe one of the most important steps a marketing plan can include, yet many lack. Doing evaluation, allows one to:

• Reflect on the strengths of the campaigns
• Document the process so there’s no reinventing the wheel for next time
• Identify areas for improvement
• Lets you gain and track client feedback
• Find ‘lessons to learn from’
• Calculate ROI and compare to previous years/cases

For best evaluation results, one should meet with a team, get outside feedback, talk to the client(s), key associates or other employees who had a hand in the project. Now, it the fun part. I want to introduce to you a great, but commonly unknown tool to add to your evaluation methods: the User Interface Test.

User Interface is a concept that describes how users interact with a website. If you’ve ever had any of the following questions, then conducting a User Interface test might be right up your alley:

1. What should be on the homepage?
2. Should the main graphic be video, a slideshow, a moving graphic, etc.?
3. Where should the ’search’ button go?
4. Is our website easy to use?
5. How functional is our website?
6. What’s the message our users are getting?
7. What would make our website easier to use?
8. When someone first comes to our site, what’s the first thing they see?
9. What would get users to spend more time on our pages?
10. Does everything on our site communicate our message?
11. Does our content engage the reader?
12. What is someone expecting when they come to our site?
13. Is the site easy to use?
14. Is our site customize-able?
15. Does our site have a professional tone? or an appropriate tone?
16. Does our site speak relevance to those trafficking the site?
17. Does the design capture attention?
18. How do our users interact with our site?

If you find yourselves asking these questions and similar others, then a User Interface test could be right up your alley! To test your User Interface, you can use either quantitative or qualitative approaches. Four qualitative approaches are outlined below.

1. Time to Task: Tests ability for tester to complete an action to user’s satisfaction in a decent time.
2. Accuracy: Tests the accuracy of the website and the information found.
3. Emotional Response: Tests how the testee responds to their overall experience on the site or in conducting their tasks.
4. Recall/Repetition: Tests ability to recall the process it takes to find desired information. Also looks as how the testee’s ability to recall where he or she is on the website and how he or she arrived there.

To create quantitative results, one can have testee fill out forms measuring various categories on a scale of 1-5 (customization, professionalism or tone, design, organization, usefulness, relevance, and interactivity.)

Hope this little research tidbit, and way of evaluating your website comes in hand. =)

Dream big. When non-profits look at the World of Web 2.0 and begin to learn about all of its possibilities, I think you should dream big. This accomplishes two things:1. Can create excitement and a learning culture when presented to staff. If no ‘expert’ knowledge is really held by any, it can bond staff together in that everyone is experiencing a similar learning curve where all inputs and questions are equal and valuable.

2. Shows that your organization or cause can be limitless and bigger than yourself and your staff. Oftentimes, it brings staff members back to the original purpose of why they are doing what they do by reigniting their passion.

Now, keeping dreaming big in mind, I also empathize with the Non-Profit Tech blogger, Allan Benamer whose post discusses Web 2.0’s barriers to entry in some non-profit worlds. Allan brings up some great points on how a non-profit can approach technology, all technology, and create a culture shift within organizations without the web 2.0 hype.
To share an experience, last summer I was a research consultant for a non-profit organization. This included conducting an e-communications training workshop for all staff, conducting a User-Interface study, gathering relevant case studies, identifying and researching a target audience (Surprise, the millennials), and drafting recommendations for the organizatioan’s e-strategy.

In brief, the whole project was a great success. We purposefully left out a budget section of the recommendations as the chief communications officer and I agreed that a budget section would limit the brainstorming process by placing the focus on what we can and can’t do, rather than bringing the staff together to learn, brainstorm and have fun.

From the experience, the staff as a group, came to the consensus that they were focusing too much on their inputs, than their outputs in all their communications and strategy. It may seem like a simple outcome from the project, but it meant great changes for the organization. It brought everyone back under the original purpose of the organization - to help their clients, show how fun doing good can be and to share that with others. Instead of focusing on text bringing in donations and showing how each dollar would be used (which is important) and looking at what the organization could ‘get’ from their donors….they instead made a change. They started to focus on their outputs and what they are offering as a whole.

Now, the organization is changing for the better by the day. These changes include:

• Updates and additions to their website and e-communications strategy. Some of which include simple presentation changes but others include great uses of Web 2.0.
• A refreshed staff who is renewed by their passion and greater purpose of the organization.
• Increased organization internally.
• More ways for volunteers to get involved.
• Greater participation and interest in events by the millennial audience.
• And more!

All in all, yes, technology is great. Yes, Web 2.0 can be fun and helpful. But also.

Dream big. Remember your purpose. And, focus your energy on your outputs and your inputs will follow. (As a quick analogy, if you focused solely on blog traffic, would you get more traffic? Or, if you focused on offering great content, wouldn’t the traffic follow? Think Field of Dreams.)